Sunday, December 4, 2016

They see me enrolling...

Despite the PRESENT trial being declared futile, I have not lost my sense of need to be an active participant in the science around breast cancer treatment. That is why I'm enrolled in the Army of Women and friended the Young Survival Coalition on Facebook. Through one of these two places I found the most recent study to enroll in; a study with the Mayo Clinic called "Genetics of Chemotherapy-Related Amenorrhea in Breast Cancer Survivors".

This purpose of this study per their documentation is  "to understand how genetics contribute to the likelihood that a woman may lose her period and/or her fertility due to breast cancer treatment". As medicine moves towards being able to be tailored toward a person's genes I think that looking to see why people have certain side effects while others don't,  is exceptionally important.


This study has a lot less effort/time/blood/scans than the PRESENT study. You can see in near entirety what the researchers are requesting. They wanted paperwork (which I sign and the hospital releases my file), completion of an online questionnaire (not seen above) and a tube filled with spit. Yes, spit. There were even directions to not count the bubbles and continue to produce enough saliva to fill the tube. Then you put the paperwork and saliva in their prepaid, pre-addressed envelopes and send it all on its merry way.

That is it. A tube full of spit, some signatures and these scientists now have data they want to study and saliva to process.  

In 3-5 years we shall see if any correlations can be made.

For Science!

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